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Living with medulloblastoma

Stories from people navigating medulloblastoma — diagnosis, treatment, caregiving, and the ordinary days in between.

1 story

An open notebook beside insurance letters, a calculator and receipts on a kitchen table.

Navigating Care

The Insurer Denied Proton Therapy. Their Town Raised $42,000

A denial put a child's radiation plan and her family's finances at risk. They tracked every cost in a notebook while neighbors raised money and an independent reviewer reconsidered the case.

Daniel Reyes · August 21, 2026 · 7 min

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