Living with idiopathic intracranial hypertension

Stories from people navigating idiopathic intracranial hypertension — diagnosis, treatment, caregiving, and the ordinary days in between.

1 story

A notebook beside a computer keyboard, with a pair of glasses resting near the open page.

The Long Road

Doctors Focused on Her Weight Until a Spinal Tap Saved Her Sight

For 11 months, headaches and spots in her vision were folded into conversations about weight. An eye examination finally exposed the pressure threatening her sight.

Theo Marsh · August 12, 2026 · 8 min

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One health journey each morning — no advice, no alarm, just company for the road.