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Living with amyotrophic lateral sclerosis

Stories from people navigating amyotrophic lateral sclerosis — diagnosis, treatment, caregiving, and the ordinary days in between.

2 stories

An open caregiving notebook beside a pen and folded laundry on a kitchen counter.

Caregivers

At 36, She Left Work to Care for Her Husband With ALS

Maya became a full-time caregiver while friends were building careers and families. A $12 notebook showed her how much the work had taken over, and what help they could afford.

Rosa Delgado · August 18, 2026 · 7 min

Other conditions

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